• Welcome

Registration and recordings

Register to come to "the maison internationale" and attend the conference.
Not available? Register for access to the recorded meeting, available every evening throughout the event.


Dear friends and colleagues,

We are very enthusiastic to organize with you the very first World Congress on Rare Skin Diseases in Paris from 7 to 9 June 2022. We count on you to bring your knowledge, experience and originality! We will get together the medical teams, scientists, patient representatives, policy makers, as well as industrial teams. Our common goal is to boost the collaboration between specialists from different centrers and countries and to increase research and clinical trials in order to improve patient care and quality of life. In addition, we want to involve more and more the younger generation in the management of rare skin disorders.

The program is articulated around:

  • 4 plenary sessions discussing the multidisciplinary management of rare disorders, clinical trials, orphan drugs, active research, and rising stars
  • 28 parallel workshops on the various diseases and topics, (genodermatoses, complex vascular anomalies, auto-immune bullous diseases, autoinflammatory disease, hidradenitis suppurativa, neurofibromatosis, severe cutaneous drug reactions, rare skin cancers, hair abnormalities, pigmentation disorders, puzzling histological cases, social aspects of rare skin diseases, etc.)
  • 1 poster session (there will be a call for posters)
  • 2 training sessions: “Juniors challenge Seniors!” and a dedicated training session for French speaking countries (“Formation à partir de cas cliniques”).

We are counting on you to join and share this new adventure to improve patient care. Join us for 3 days to share the dynamism and commitment of the scientific community and to move forward together. We hope that many of you will be able to attend! See you in Paris!


christine bodemer

Christine Bodemer

ERN-Skin coordinator

maya el hachem

Maya El-Hachem

President of the Rare Skin Diseases Network of the Fondation René Touraine

Scientific Committee

President: Antonio Torrelo, Spain

Johann Bauer, Austria
Christine Bodemer, France
Bert Callewaert, Belgium
Maya El-Hachem, Italy
Sarah Guegan, France
Cristina Has, Germany
Pascal Joly, France
Céleste Lebbé, France
John McGrath, United Kingdom
Branka Marinovic, Croatia
Edel O’Toole, United Kingdom
Antonio Torrelo, Spain
Pierre Wolkenstein, France
Christos Zouboulis, Germany

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Organized by

  • Logo ERN Skin
  • Logo Fondation René Touraine

Supported by

  • Logo EU
  • Logo RSDN
Banniere AFDE